The overall objectives of the U.S. CTEPH Registry are:

  • To characterize the demographics and clinical course of WHO Group IV CTEPH
  • To chronicle short and long-term outcomes of pulmonary thromboendarterectomy (PTE) in patients with operable chronic thromboembolic disease
  • To identify pre-, peri-, and postoperative predictors of successful PTE
  • To evaluate outcomes and predictors of outcomes of nonsurgical therapy in patients with CTEPH
  • To collect pertinent data that will contribute to improvement in the diagnosis and treatment of CTEPH and will support relevant research endeavors